Sunday, December 23, 2012

Go Home And Love Your Family


















I wanted to write this post before Christmas, to all of you waiting news of Indiana.

I just lived through some of the most horrible days of my life.
Indiana's symptoms, double vision, balance problems, and problems swallowing, pointed to the possibility of a brain stem tumor. It's the most insidious of them all, as it's inoperable and usually the children have less than a year to live at the time of diagnosis.

We know of a little girl, six years old now. She was Indiana's age when she presented with exactly the same symptoms as her. She is now at the terminal stage of her illness.

Several pediatricians and neurologists told that we should get the MRI done as soon as possible. We were in waiting line, but it would have taken a few more weeks, so we just took her to the emergency room and they found a time for her scan the next morning.

I have never been so scared in my life. Before my mother died, I still had this naive belief that "it can't happen to us". She passed away just one month after the doctors told us that it wasn't serious. Anything could clearly happen, even to us.

We read the Children's Bible to Indiana every night. 

Hundreds of prayers were said for her by dozens of people.
We are thankful for them all. And now we can all pray for that six-year old girl who is terribly ill, and for her family, so that she would get well, and that they would have strength and peace. You can pray for her too, God will know whom you are talking about.

Indiana was so brave even though she was scared when she had to be anesthetized for the procedure. 
When she woke up, we insisted that we wanted to be there by her side, and she was in good spirits and gave me a hundred kisses.

We got the results the next day - the scan was normal. The past days seemed like a really, really bad dream.
Her symptoms are a mystery, but anything is better than what we feared for. 

That was our best Christmas gift. 

And yet again I was reminded in the most profound way of what truly matters. 

It's the three of us together. It's our extended family, and other people in our lives. Enjoying every day together, striving to be good to others, remembering God, letting go of the little things.

And I realize that I have been entrusted with caring for her, but she is not really my child. She is God's child.
If He had plans for her that were contrary to my wishes, His will should still happen.
Nothing happens to her without Him knowing about it.
No matter how much I love my daughter, God still loves her more.

He loves us all infinitely much.

I wish you all a Happy Christmas and a Blessed New Year.
I think this quote fits well these turbulent times:

“What can you do to promote world peace? Go home and love your family.” 

~Mother Teresa 

17 comments:

Dan Garner said...

Merry Christmas.

Dan @ ZenPresence.com

Minimalist Mommi said...

Hugs to you! Such great news! I hope you do get some sort of diagnosis as I'm sure that would help, to have some sort of explanation. But having the reassurance that it's not the worst is surely a massive relief. I hope you have a wonderful Christmas!

mamaof3 said...

Oh honey I am so pleased to hear that your precious girl is allright! We have been praying and my hope was for a good result but always for God's will first. He must have special plans for your sweet girl! Please also pass along our prayers to your friends whose child is ill! Have a Wonderful and Merry Christmas! Love Kate

mamaof3 said...

Oh honey I am so pleased to hear that your precious girl is allright! We have been praying and my hope was for a good result but always for God's will first. He must have special plans for your sweet girl! Please also pass along our prayers to your friends whose child is ill! Have a Wonderful and Merry Christmas! Love Kate

Sabrina @ Butterfly Brain said...

That is amazing news. I am so happy to hear that, and I can't imagine what you must have been going through. Have a happy Christmas:-)


Sabrina

tammy j said...

vappu
dear one.
words fail.
i am happy for you.
the white light of his love ever around you and your little family.
xo
tammy j

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kettlepot said...

Father of a three year old, I can't imagine how scary this is for you. I'm glad that the scan came back normal, and happy thoughts for the future.

Sandra said...

I'm so happy that your daughter's scan was normal. What a worrying time for you all.

It's also such a blessing to read of your faith in God that no matter what happens it's all in His hands.

Merry Christmas to you and your family!

Sandra said...

I'm so happy that your daughter's scan was normal. What a worrying time for you all.

It's also such a blessing to read of your faith in God that no matter what happens it's all in His hands.

Merry Christmas to you and your family!

Jill Foley said...

I am praising God with you that the diagnosis was not what it could have been. Praying with you as they continue to try to figure out what is causing all the symptoms...and praying for the other little girl.

Merry Christmas.

Lola said...

I am so happy that the scan came back normal. I hope the mystery of her double vision and other issues either are diagnosed and 'cured' or go away quickly.

I am so sorry you had to live through such fear. I recently heard from Temple Grandin that "fear is worse than pain."

What you've written on the other side of this is wonderful. It is a gift to all of us who read your blog.

This came to my mind-
Romans 8:28
And we know that for those who love God all things work together for good...

I'll hug my darlings a little extra because of your post.

Lola said...

Here is a post from moldrecovery that might be helpful from the Fabry family blog:
http://moldrecovery.blogspot.com/2009/04/vcs-testing.html#uds-search-results

Julie Nicholson said...

Great news so you can celebrate the good news of Jesus birth with peace in your heart.

heini said...

Niin hyvä ajatus tuo! Ihana kuulla, että ei ainakaan sellaista vaikeaa edessä Indin kohdalla ja että tuo selvisi näin pian. Hyvä kun pyysit rukoilemaan toisen puolesta.

Bethany Rosselit said...

Wow. I haven't been here in awhile, with the holiday craziness. But, wow. What a scary time, and I'm glad everything turned out OK. Keeping your daughter in my prayers.

Bethany@OurSoCalledLife

tammy j said...

just checking on you vappu ~
i hope your silence here is only because you're taking a well deserved break ~ and not that there is new or even more serious illness for you and your beloved child.
let us know ~ those of us who truly care for you ~ even if it is only "hello! we are fine!"
hugs and happiest of new years to you and your wonderful family!
xo
tammy j